Who has made an impact on my Myositis

Well I never really thought about this before but it was a question posed by Believe in Who You Are for the 77th Disability blog carnival.  I did not have to think hard or long about who had made a positive impact on me when I was first diagnosed - it was definately the  Polymyositis & Dermatomyositis Support Group which is a great and supportive online group at Daliy Strength.
Such great people who are always there when I need them, listening to and accepting others' experiences,  helping to evaluate relevant information and relating personal experiences and providing understanding as only someone else with the same disease can.

No longer rage against the disease

Acceptance of one's life has nothing to do with resignation; it does not mean running away from the struggle. On the contrary, it means accepting it as it comes, with all the handicaps of heredity, of suffering, of psychological complexes and injustices.  Paul Tournier,  Swiss Author

There are many things I have acccepted now, at this stage, about this myositis. Many things I do differently. It is hard to think about them and put them into words

I don't understand Myositis

Is it an inflammatory myopathy?
Is it a muscular dystrophy?
Is it an autoimmune condition?
I don't know and I don't know why one day the pain in the shoulders is SOOOO bad and 3 days later it is the wrists or the thighs. The frustrating thing is accepting that treatment is limited to pain management and expensive physical interventions.  The pain is so bad it makes you want to...