How good it is

I have been eating what I want and relaxing, visiting friends and family and NOT WORKING and I feel great.
I usually watch my diet carefully thinking it might make a difference to all my symptoms.
I also usually only work for seven hours each week, plus one and a half hours traveling time ( over 2 days) but if this is how great I feel when not working I wish I could win the lottery and never work again.

Wishing you a wonderful and healthy 2012.

Christmas myositis update

Everything is going smoothly. Hurrah!
I am going okay in the lead up to the great Christmas party at our house - over 20 guests.
This okayness is only due to large amounts of help from family. Thanks to my husband who shops and wraps gifts and has written most of the cards this year; to my teenage daughter who has come shopping with me for the hour here and there I can manage; to my sister in laws who are cooking the ham and turkey and pudding.

Wishing you a wonderful time
however and whatever you
celebrate.

Coping with Christmas and chronic illness



Christmas shopping is proving difficult, tiring and causing extra unmanageable pain in an already overburdened body.  Shopping online is an option but I think I have left that too late to receive the gifts in time. Next year I will have to start planning and purchasing much earlier. How are you managing?

"Holidays act like a lightning rod where all the physical and social concerns around chronic illness get really highlighted,"