What does Myositis mean for me?

I have polymyositis,which means inflammation in many muscles, if I remember correctly.

What it means to me in my everyday life is listed here:

• I can no longer sit in a chair for longer than 1/2 an hour without having to get up and stretch
• difficulty with walking up and down stairs
• difficulty with getting out of chairs
• pain in my muscles - especially those in my upper arms and upper legs
• very difficult to squat
• very difficult to get up off the floor
• constant pain in muscles
• arthritic pain in most joints, except knees
• living on pain killers
• enlarged muscles in my thighs and upper arms that make me look overweight
• difficulty swallowing dry food
• difficulty talking for more than about 10 minutes
• pain from muscle use e.g. more than 1/2 an hour on computer gives pain in arm, neck and shoulders
• when reading, text becomes blurry
• chopping veges and other food prep is difficult and painful
• standing for extended periods causes extra pain
• many doctors visits to get prescriptions
• specialist's visits
• blood tests every month

Of cause every person is different and these are just some of my daily challenges.