In a myositis flare!
So what does that mean and what does it have to do with a turtle?
You often hear people with autoimmune conditions like MS or fibromyalgia say they are "in a flare" and I guess generically it means that their symptoms have flared up, gotten worse and they know that they will calm down again to their "normal" symptoms. But here is what it means for me with polymyositis:
The pain has increased to where I cannot really bear it and I have the option of a. taking more painkillers and being grogged out and not functioning or b. retreating from the world, as if I had the flu or something else contagious, and living in my room until it blows over. I suppose there may be a c. but I have not thought of it, probably because I am in so much pain I can't think straight.
So besides the pain it feels like you are just pushing yourself to do anything - the muscles are weaker so getting out of a chair makes you feel like a turtle stuck on it's back that cannot get up or over. Pouring the kettle hurts, walking up the stairs is nigh impossible except at turtle speed and with a long recovery at the other end and typing is excruciating to the fingers, wrists, arm and posture. So, sorry if I have not posted or do not post for a while. I know that if you are interested you will read some older posts like:
No longer rage against the disease
It is all about the muscles
Knowing what it is helps
PHOTO: Summerian relief carving of turtle from Louvre Museum
at 3:23 PM