- that proximal muscles also means core stomach muscles which is why my stomach muscles are weak.
- that by exercising I should not expect to increase muscle tone, like ordinary people, but just prevent further muscle deterioration
- that the reason my joints and tendons are suffering is that the muscles are not working properly and therefore putting undue work on these other parts.
I hope this has helped someone else understand a little about muscles and myositis. If so please let me know here in comments. I would love to hear from you. This is apparently a rare condition so it would be great to catch up with others who have it.
Hi! I found your blog through google. I'm waiting on a diagnosis and my rheumatologist is suspecting something in the myositis family. I'm having an EmG this week hopefully and then a muscle biopsy as well. Do you eat Paleo? If so, has it helped?
ReplyDeleteHi Katie, So good to hear from you. Sorry to hear you are not well. It could be so many different autoimmune diseases (here are the basic neuromuscular ones) or other things. A muscle biopsy is what diagnosed me and was no major drama and has not left a huge scar (3 years down the track).
ReplyDeleteI find that diet is very important for me and have been diagnosed with wheat and dairy allergies 20 years ago and always exclude them (Though sometimes it is very difficult in the west) I basically eat Paleo and it helps me feel more clear headed and less fatigued but unfortunately does not cure polymyositis.
Best wishes and keep us updated with whatever it is as have so many contacts in different health blogs.
I’m amazed, I have to admit. Seldom do I encounter a blog that’s equally educative and
ReplyDeleteengaging, and without a doubt, you've hit the nail on the head. The issue is an issue that too few men and women are speaking intelligently about. I am very happy that I found this during my hunt for something concerning this. Here is my web-site ...
Thankyou for your kind comments about my blog and so pleased it can help others.
DeleteTo be specific, Myositis is the generic medical term for swelling or injuries of the muscles caused by accidents or infections. Anyway, our muscles must have equal exercise to avoid injuries caused by doing sports or activities.
ReplyDeleteHi Candy, thanks for taking time to comment here. Your explanation of Myositis is a dictionary definition. To be more specific " Myositis is an autoimmune disease involving chronic inflammation that leads to the weakening of muscles over time, particularly those in the neck, shoulders, hips and back. It may be painful, too." ~ University of Michigan and "Myositis makes your immune system attack your muscles. Depending on which type of myositis you have, you’ll have a hard time moving or using your affected muscles. There’s no cure for myositis, but in most cases, treatment can put it into remission." ~ Cleveland Clinic. I hope that clarifies it a bit.
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