an inflammatory myopathy that affects the muscles
Great that something is working 4 u. (why am I anon.? No one knows I have polymyositis YET!)
Don't worry about being anon. I just like to hear from you. When will you tell people you have polymyositis? This is something I fought with too - especially with work and my younger children.
Oh it's so good to hear that! I just came across your blog...I'm curious to read more!How much of the immunosuppressants do you have to take?They want to increase my dose too but then I always feel very sick in the morning...
I take my immunosuppressants at night time now to prevent the nausea. At first I was nauseaous for about 1 week and just had to push through. Now I am no longer feeling the nausea. I will do a post about this soon. Thanks for the question.
Hi,It's nice to know there are people like you who are passionate in maintaining a myositis blog. I am also a blogger of a myositis support group, http://www.myositissupport.org/. It's powered by bensfriends.org. :) It's nice to help other people through blogs.Nice hopping by your blog,Mary
Mary so nice to hear from you. I will visit your blog now often, thanks for taking time to comment as it is great to connect when it is a rare disease.
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