Imuran, or azathioprine, is what I am taking to help with the pain of myositis. It is used to suppress the immune system. I have some new symptoms which include painful swelling of tongue, hands and feet and a rapid weight gain. I rang my specialist who said it was an unusual side affect of immunosuppressants but he thought it sounded like angioedema. I had never heard of this.
When I later explored the net this is what I found:
cause Angioedema? on eHealthMe which is a site that checks side effects, drug interactions, efficacies, reported by 5
million people since 1977.
Oct, 5, 2012: 8,507 people reported to have
side effects when taking Imuran. Among them, 4 people (0.05%) have Angioedema.
So this means, while quite a small percentage, some people, like me, do get angioedema when taking Imuran. I have been taking this drug for nearly a year so it is not an immediate reaction. At first I had nausea but after about 3 weeks and changing when I took the drug to the night, that went away.
Read more of my story with Imuran.