- that proximal muscles also means core stomach muscles which is why my stomach muscles are weak.
- that by exercising I should not expect to increase muscle tone, like ordinary people, but just prevent further muscle deterioration
- that the reason my joints and tendons are suffering is that the muscles are not working properly and therefore putting undue work on these other parts.
I hope this has helped someone else understand a little about muscles and myositis. If so please let me know here in comments. I would love to hear from you. This is apparently a rare condition so it would be great to catch up with others who have it.