Friday

Myositis Malaise


  • Malaise (/məˈleɪz/ mal-AZE) is a feeling of general discomfort or uneasiness, of being "out of sorts", often the first indication of an infection or other disease. 
  • Fatigue occurs with malaise in many common diseases. 
  • Malaise can be accompanied by a feeling of not having enough energy to accomplish usual activities. 
  • A vague feeling of bodily discomfort, as at the beginning of an illness.
So this is what it has come too. I wake up in the morning and head down stairs for my first cup of tea and can't even pick up the cup without pain. It's like lifting a 10 kg weight! (I use to lift weights for fun!)

Photo By: Cpl. Courtney C. White                                                                                                      

This simple act of waking and getting a cuppa has different conotations for people with chronic pain and muscle disease:
1. Waking
 - realizing your body is in pain
 - trying to get out of the bed (trying may be the operative word, especially when you find it difficult to roll over or sit up)
2. Walking
- stiffness but just try and get moving
- down the stairs is an extra challenge and extra pain (think yourself lucky you can still manage pain)
3. I could go on but typing is tiring my fingers, arms, shoulder and back...

4 comments:

  1. Medications are prescribed in case the Inclusion Body Myositis is diagnose in order to suppress your immune system, for example corticosteroids, immunomodulatory, anti-inflammatory and immunosuppressant drugs, but unfortunately patients do not tend to respond such treatments. The product named as Meyseton, offered by Herbs Solutions By Nature has proved to stop or slow down the progression of IBM, and is possibly the best treatment possible for Inclusion Body Myositis. It has no side effects, and is easy on your pocket

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    Replies
    1. Thank you for this interesting information about Inclusion Body Myositis

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    2. The description above of Malaise and the daily work of just getting out of bed is perfect. It's so hard to explain how you feel, but you did it perfectly. I don't start having any energy until about 2PM and then I can do a few things. I have found medical marijuana helps with the pain, energy, and well being.

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  2. Thanks Bob for that, I'm glad you liked my description but sorry you have the problem. Interesting about the medical marijuana. It's only just becoming legal here in Australia for people with cancer. We have a long way to go!

    ReplyDelete

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