Assessing my muscle disease

I am off to the specialist tomorrow.
That means today, and this week, I am assessing what I am up to as far as my health is concerned, specifically my myositis.
My muscle disorder causes weakness and pain and muscle wasting.

Myositis is an autoimmune disease caused by inflammation of the muscles.  I have been told I have Polymyositis which causes muscle weakness in the muscles closest to the trunk of your body including the upper arms and upper thighs.
Other symptoms include:

• Fatigue after walking or standing
• Tripping over
• Difficulty getting to a standing position
• Fatigue after walking upstairs
• Trouble swallowing

So what will I be discussing with my specialist includes the new symptoms I have which include:

• extra weakness noticed when trying to lift things
• more frequent tripping (but not falling)
• memory concerns
• extra weakness in my chest
• pain behind my right eye, right ear and on the base of the skull
• increased finger and hand weakness with turning keys, using scissors, holding knives, chopping food and opening cans.
• more tingling and numbness in lower arms 

I will be taking this list with me. I am not sure if all the things in my list are related to myositis but they need mentioning, in my opinion. Another thing I have found that I think is extremely useful 10-point functional rating scale for patients with inclusion body myositis (IBMFRS) which is posted here.